Ethical Issues of Genetic Testing in Pediatrics Research Proposal

Ethical Issues of Genetic Testing in Pediatrics - Research Proposal Example has traditionally necessitated that future parents be presented with detailed information and then be permitted to select which genetic diagnostic screening or test to use. Because of high opinion for reproductive decision-making and confidentiality in the area of genetics, and to put off misuses and exploitations such as efforts at eugenic control, practically every genetic counselor promotes the principle of value-neutral counseling and self-determining decision making. This framework is theoretically interesting, and in operates finely in contexts where knowledgeable and experienced counselors are available and inexpensive, and where counselors and patients have a common cultural context (Heyman, 2001). However, the demands of regular prenatal care make it problematic basically to reverse this ethical perspective into the obstetric care clinic. The population of patients is quite large; there is insufficient time as it is to address patients’ physical and psychological requirements, and there are oftentimes quite obvious discrepancies between the social and cultural contexts of pediatrics health care specialists and their patients. Furthermore, genetic counselors have traditionally commonly been able, on the basis of particular clinical suggestions, to concentrate their mind on one health disorder or symptom at a time, whereas in the future, decision-making will most probably embrace a broad scale of circumstances for which future parents may be at no specific elevated risk. In the expression a public health professionals, the issue will hence be related to screening rather than the testing itself (Kolker, 1994). There are also ethical issues of substance that assert in favor of a fresh framework for presenting counsel to future parents. Most significantly, the gains of extensive screening have yet to be acknowledged, and there are possible troubles that as well demand examination, including elevated levels of anxiety regarding the pregnancy of regarding